Both my Boys have Lyme too (written 03/19/09)

Thursday, March 19, 2009
BOTH MY BOYS HAVE LYME TOO

Both my boys have Lyme disease. I now believe that they were probably born with it.

This disease can take years and years to show its true self. In the mean time it can cause minor symptoms that can be attributed to other things. Therefore, it can be overlooked as a possibility in children. But if treated while young the prognosis is much better.

I now believe that Brandon shows more symptoms then Adam because he was taking a steroid inhaler for his asthma for years. Steroids are so bad for Lyme that my doctor told me "No steroids unless it is to save my life". They make the Lyme much worse.

Brandon has always been more of a sick child then Adam. Brandon is also the only one that breastfed and it is proven that Lyme is found in breast milk.

Both boys are about to start on antibiotics and supplements next week. They are going to take Biaxin right now. It is not sun sensitive like the one I am on.

They both have to get a ton of blood work done to check all their different levels. Also to check for other possible viruses and bacteria that are common with a person who’s immune system is busy fighting an illness.

They both have to be tested for co-infections that ticks carry along with Lyme. This will complicate their treatments and make symptoms worse if they have multiple bacteria in their bodies. Co-infections that I suspect are Bartonella and Babesia. Babesia is a cousin bacteria to Malaria.

Adam also probably has Epstein Barr Virus (which causes Mono). His spleen is enlarged so he can't take gym class anymore and he has to be very careful. If your spleen ruptures you can die. He also had to quit track because of his spleen and because of his leg weakness and pains.

Right now Adam is trying to finish the school year and attend a few field trips. Once he starts treatments the bacteria will die and release toxins in this body. He takes detox meds right now so I hope that will help. But the toxins will make him feel worse and cause his symptoms to flare up. If this gets too bad he will have to take a medical leave from school.

We are not sure what Brandon is going to do? I am trying to meet with the principal to talk to him. His doctor told him he can take a medical leave but he isn't sure he wants to. He doesn't want to leave his friends and miss the end of the school year fun things. His symptoms are causing him to miss several days a week sometimes. He is also late a lot. The one symptom that is hard for him right now is urinary urgency. He tried to go to school on Monday with that and ended up coming home 1 hr later. He has missed 2 days this week so far due to symptoms. I would like to try to get the school to let him go part time and get a tutor part time. I have heard of other kids that do this. If they won't then he will have to take a medical leave.

On Monday (3/23) we are headed to the lab to get all this blood work done. Then we start their antibiotics and hope for the best. I am really nervous about the toxins and worsening of symptoms. This is called a Herxheimer reaction. http://en.wikipedia.org/wiki/Herxheimer_reaction

I am going to post their symptoms in a new blog....